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Wednesday 28 March 2018

Relapsing Rethinking MS

After all these years it's finally happened and I'm officially self-diagnosing a relapse. Last Monday I was much the same as ever, by the end of the week my bad left leg was my relatively good leg and my good right leg my really bad leg. So now I can barely make it to town with Harriet and a trip out with Charlotte resulted in needing two crutches at home.

It's a case of waiting patiently to see if right leg recovers at all. Unlikely I know, but it is what it is so I just have to adapt. I've been thinking about a little (portable) mobility scooter for a while and finally ordered a Travel Scoot



We've known we need to move to a bungalow for a long time, but I really want to stay in my lovely home whilst Ali is at college just down the road.

It's a minor thing really, but would it have happened if neuro number 3 had been happy to risk my lack of lymphocytes for a shot of cladribine? Probably not. In my (limited) experience patients are less risk averse than neurologists. Caroline Wyatt, in her beautiful piece for the BBC:


Caroline Wyatt article

wrote that she has no regrets at risking all with HSCT treatment if only for knowing it gave her two years of hope.